You may be an association that already has a data registry. Or one that is considering it. Registries support an industry and are sometimes driven by federal regulations. For instance, a clinical data registry records information about patients’ health status and the care they receive over time, allowing physicians to see what treatments are available and how patients with different characteristics respond to certain treatments.
Registries are not simply “another database” or something casually assembled. The contain very sensitive data. They may be impacted by multiple government laws. The volumes can far exceed what is typical in a membership association environment. They can be a big revenue driver.
For a registry, it pays to work with a partner that knows this space and has a successful track record. Talk to us and see how we can bring our leading experience to your association. For more information, contact us at firstname.lastname@example.org.